I would like to acknowledge that the CGRP drug is a really great step in migraine treatment. I love hearing stories of others experiencing positive results from CGRP and I hope that it continues to help many, many more. I also wish I had been one of those lucky enough to reap the benefits.
This goes without saying that previous drugs I’ve tried up to this point have been unsuccessful or had negative side effects — the difference is that CGRP is such a new drug with minimal information out there. It is not my intention for this to sound negative or anti-Aimovig. I merely feel called to share my experience, and while it seems it’s a small percentage of most patients’ there are others who have confirmed having some or all of the same side effects that I did.
My hope is that readers find this information helpful, weigh the pros + cons and educate themselves. As we know — no two migrainuers are the same, and neither are their experience with treatment plans.
Injection Date: 12/27/18
Dosage: (2) 70mg = 140mg
Month Four: 11/29/18 — 12/27/18
Side Effects + Thoughts
My side effects are not currently acknowledged by Amegn or the FDA.
I felt semi-positive entering my 4th month on Aimovig because I read various Reddit and Instagram comments that the 4th month was the “sweet spot”, where others saw their electric shocks disappear and found themselves having fewer migraines. I was hopeful but hesitant.
Unfortunately for me, on top of all the side effects I had been experiencing since the 1st month, I began to develop new more troubling side effects.
- Shortness of breath
- Heart beat bursts, feeling was like a triple heart beat to a regular one beat (happened several times per week)
- Nausea and lightheadedness
- Sharp pain in my chest that felt like a bruise (would last for several minutes to all day)
- Tingling nerve pains in my back, feet and face.
- Constant muscle aches in my shoulder, hips, hamstrings, and feet
- Electric shocks in my head and body. These started to subsided a little bit but picked back up at the end of the month.
- Major loss of appetite
Initially, I had some low-pain days sprinkled in at the beginning of each month, but was met with alternative pain and symptoms. Some so debilitating that I couldn’t work or drive.
Also, as with the previous months, my migraine attacks felt shorter at times but I also noticed that my triptans were becoming less effective. The amount of migraines I experienced per month was still at 15+/month.
Resources that helped inform my decision
I was on the fence to continue Aimovig into month 5 but the heart issues were the most concerning for me. My previous neurologist was honest that he was not familiar with Aimovig and I was his first patient taking it. My newest neurologist was very persistent that she had never heard of any side effects aside from the constipation and injection site irritation reported in the trails.
This article was very informative in learning exactly how CGRP works with your body. “The following are presented as a series of questions related to core systems (eg, cardiovascular, central nervous, gastrointestinal, reproductive, and more) that need to be addressed before CGRP antagonists are used widely. Most of these questions do not have answers at this time.”
Others talking about their Aimovig experience
Natalie of Mindful Migraine talks about her Aimovig Experience Recap with such beauty and grace. She discusses her expectations and while she didn’t have any side effects ultimately the drug wasn’t helping her. I love how she also included quotes from others experiencing positive results!
Erica of Achy Smile also is sharing her month-to-month Aimovig Recaps, and is the one who inspired me to have a similar format here.
This post is not sponsored and all of these thoughts are my own.